Long COVID

• List Your Healthcare Providers
• Prepare a list of your current and past healthcare providers and your current and past medical conditions, especially if you are seeing a new healthcare provider.
• Prepare a brief history that summarizes your experience with COVID-19 and post-COVID conditions. For example, write down a list of the symptoms you think started after your COVID-19 infection:
  • the date of onset of original COVID-19 illness and/or positive COVID-19 test, if known
  • when your post-COVID condition symptoms started o a list of prior treatments and diagnostic tests related to your post-COVID symptoms (blood work, x-rays, etc.)
  • what makes your symptoms worse?
  • how the symptoms affect your activities, including challenges that effect daily living, working, attending school, etc.
  • how often symptoms occur
  • how you have been feeling
  • try to describe examples of your best and worst days. Select your most important issues (sometimes referred to as “chief complaints”) and write them down.
• Prepare a list of medications and supplements you are taking. Most healthcare providers will ask you to provide this information at each appointment. Bringing your list with you will help keep track.
• Consider discussing your appointment with a trusted family member or friend immediately before and after you see your healthcare provider. This person can help you take notes and remember what was discussed at the appointment while it’s still fresh in your mind. If your healthcare provider’s office policy allows it, consider bringing them to your appointment with you.

What to expect at an appointment

The provider you meet with could be a doctor, nurse, nurse practitioner, physician assistant, or other type of healthcare professional. It may take more than one appointment to evaluate potential post-COVID symptoms and determine an accurate diagnosis to better manage and treat your symptoms. Your provider may ask questions about your medical history, current symptoms, and quality of life. Depending on your symptoms, they may run tests to determine a diagnosis and plan for treatment. ;

Bring Your List of Concerns

• Appointment time is often limited. It will help to make a list of why you are coming in for an appointment. Start with your most concerning issues. Your provider might call this your “chief complaints”.
• Focus on talking to your provider. If your provider still needs any of your past medical records, ask to sign required forms to give your permission to have these records sent.

Ask & Answer Questions

• Ask questions, starting with the most important ones. Don’t hesitate to ask your healthcare provider to clarify the answers if they are not clear to you.
• Be prepared to discuss your activity levels, what activities make your illness worse, and any medications that seem to improve or worsen the symptoms.
• Answer the provider’s questions. Explain how you feel. Be straightforward, and don’t be embarrassed to talk about anything.
• Let your provider know if there have been any changes to your prescribed medications and supplements.

Know Your Next Steps

• Make sure you understand the next steps. Bring pencil and paper to write down instructions or use your hand-held device for notes. Repeat back what the provider has told you to check for understanding. 

Ask for a Summary

• Ask for an appointment summary. You can also ask the provider to write down any instructions, medication names, etc., for you. If there are changes to your treatment plan, make sure you understand what to do. For new medication, ask why it is being given and what you should expect by taking this new medication.

Download a printable version: On the Day of Your Appointment | Español

Track Your Appointments

• Make appointments for follow up and any additional testing.
• Record future appointments on your calendar. Ask a friend or family member to put the appointment(s) on their calendars as well. Ask the provider’s office if they will call or email you with an appointment reminder.

Work with Your Healthcare Provider

• If you are confused or don’t remember something your provider said, call the provider’s office for clarification.
• Follow your provider’s instructions as closely as you can.

Document Your Experiences

• Continue to record symptoms in a journal, if possible. Some people with post-COVID conditions find it helpful to include:
  • whether symptoms have improved
  • which treatments have improved symptoms
  • any side effects
  • any other new symptoms or changes
• Make a note to give your healthcare provider feedback about how recommended interventions have worked for you.
• Write down any issues you did not have time to talk about at the last appointment.
• Keep track of medications, vitamins, herbs, supplements, and over-the-counter drugs you take, using a current medications and supplements list.
• Remind your provider to share any test results if the expected window for receiving the results has passed.

Set Goals with Your Healthcare Provider

• Your provider may run tests that return normal results. This does not change the existence, severity, or importance of your symptoms or conditions. Healthcare providers and patients are encouraged to set achievable goals through shared decision-making and to approach treatment by focusing on specific symptoms or conditions

Download a printable version: After Your Appointment | Español